Health update (stroke)

You may (or may not!) remember that last September I was very ill and needed an operation on my brain for a bleed. I was discharged from hospital Jan 3rd 2014 and have been recovering at home, albeit slowly.

Today I had to attend a neuro clinic at Addenbrookes Hospital as an out-patient. They seem very pleased with my recovery, which is good news.  I may be driving again in the next few months.

They are doing a further MRI scan June 30th to see if my remaining giddiness when walking/turning can be helped. In all, it was a good outcome - nothing dramatic to report. Giddiness should continue to improve given time - just be patient - as the brain learns to cope and rewires itself.

Health Update

I have now been out of hospital for almost a month following my stroke, so thought I'd better update you on progress.

Well the good news is my walking is coming along quite well. Although I still need a stick, the Zimmer frame is now almost unused.  My wife and I do a 10 minute walk around the Close daily.  A couple of weeks ago I managed a 1 mile walk at Anglesey Abbey (NT). My main issue when  walking is giddiness. This is I believe improving. Another issue is feeling sick inside at certain times of the day. I sleep (usually) very well and for a long time at night. Getting around the home, even a stick is more for psychological support. I can get around OK apart from feeling giddy.

The BAD news is Community Stroke Support. I was told 1-2 week visits would be the norm, but I was, this week, told the waiting list is 13 weeks and I was 13th on the list! The CST refuse to leave messages on the phone and had I not chased them up, I would  never have known my status! This part of my post hospital recovery is PATHETIC.

My experience is NHS clinical care is usually excellent but simple communications around the NHS is appalling. If this was the private sector and MY company several people would be SACKED without delay. Really, communications in the NHS is APPALLINGLY bad generally. This is my experience, my wife's and my daughter-in-law's. It HAS to improve. The sad thing is so little needs to change to make it good and save money and give patients and families a better experience.

I have written to the DVLA but don't yet know how long they will withdraw my driving licence, but I assume for 12 months. I now have a blue disabled badge which allows easier parking when my wife drives us to the shops and National Trust properties.

Swallow is slowly improving. I eat a Weetabix and banana at breakfast and pureed food lunch and tea. I am also on an 8 hour liquid feed.

Overall, I am making progress steadily on all fronts, still doing my exercises more despite the NHS than thanks to the NHS. My own doctor and local surgery have been excellent. At the current rate I can expect to be back to near normal health in the late summer.

Today, Thursday, I wrote  an email of complant to the local NHS ,copied  my MP, James Paice MP. I am pleased to report the NHS listened and I got some positive action this afternoon (speech and language lady coming to my home this coming Monday).  It should not be necessary to do this to be heard. What if I was 85 and suffering from dementia?

Health update

Following my brain bleed I am getting better. Since being home my walking has improved and my swallow is improving too. I have still to hear from the DVLA (driving licence people) but am expecting to be prevented from driving for 12 months. I have applied for a "blue badge" for disabled parking rights. Today I surprised myself by walking quite a distance with a stick at Angelsey Abbey. I still feel punch drunk most the time and need people near me to support me.

Slowly but surely   ...a step at a time.

Thank goodness for amateur radio and all the very good friends I didn't realise I had.

Home at last

This morning, Jan 3rd, I was discharged from hospital after 3.5 months due to to a bleed on the brain.I am far from well  still and have lots of work (exercises)  to do to to regain  my health,  which I hope to do in the coming months. I know it will be a hard slog.

My 2W 10m WSPR session over New Year was very successful with plenty of USA spots in the log. I hope to get back in the shack again soon.

Release Date

The latest news from Addenbrooke's Hospital is I should be  home for good by Jan 6th. After that, apart from continuing to get better, I hope to buy a new rig and do my on-line tax return! Expect blogging proper again within a week or so. I continue to slowly improve on all fronts but find I am making lots of errors typing on the PC still.

Currently on 2 days' home leave over New Year (1 night at home) but have to return to hospital by 5pm Wednesday.