No-one, and I really do mean no-one, seems to understand how I am inside. Most of the time when on my feet I feel giddy and exhausted, but outwardly I look well. I cannot begin to explain how hard this is.
Anything mental or physical taking over 15-20 minutes and I am done in - totally exhausted. Until my stroke I had no idea what total exhaustion was. After a rest I am back to "normal".
My short-term memory is also poorer. It is now over 3.5 years since my cerebellum brain bleed, but I think there has been little improvement over the last year or so. Walking on pavements with traffic is very hard.
In many ways my symptoms mirror those of M.E. in that I feel profoundly tired at times, a tiredness like nothing I have ever had to deal with before my stroke. What is so disappointing is there is little sign of any improvement. I struggle on, but it is very tough.
26 Apr 2017
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