Not a lot of change really.
My biggest issues are not being able to speak easily, drinking liquids and feeling so profoundly tired so often, even though I sleep well. The fact that I feel wobbly when on my feet I have learned to live with. The tiredness is debilitating. I feel as if I have drunk 8 pints of beer most of my waking life. I can assure you it is no fun. Sitting down is OK. No-one, and I do mean no-one, seems to understand what a struggle it is. The comment I get is, "you do look well". If only they understood just how difficult life really is on the inside.